Little Did I Know

| By Marly Chevrette
Categories: Blog, News, Other
William Bourque
  When the doctor handed me William for the first  time and sat down on my hospital bed to tell me she thought William — though he was perfect — had Down syndrome. All I heard at the time was that my son was different and he was going to have a harder life than …

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LIFE-DSR Study – Why Natural History Studies Are Important on the Path to New Treatments

| By Michelle Slape
Categories: News, Other
In the next couple of months, LuMind IDSC will launch the LIFE-DSR (Longitudinal Investigation for Enhancing Down Syndrome Research) study. This is a first for LuMind IDSC and represents an important milestone for Down syndrome research. The LIFE-DSR study will be the first study run in LuMind’s DS-CTN (Down Syndrome – Clinical Trials Network) which …

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Cerveau Technologies, Inc. Announces Partnership with LuMind IDSC to Expand LIFE DSR Study

| By Marly Chevrette
Categories: Media, News, Other, Press
  The LuMind IDSC Foundation is excited to welcome a new Research Partner to the community! BOSTON–(BUSINESS WIRE)–Cerveau Technologies, Inc. today announced a research collaboration with the LuMind IDSC Foundation (LuMind IDSC) involving use of Cerveau’s investigational imaging agent (MK-6240) in a multicenter clinical trial aimed at assessing accumulation of misfolded tau protein in people …

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National non-profits, LuMind RDS and IDSC, merge to provide improved health, independence and opportunities for children and adults with Down syndrome.

| By Marly Chevrette
Categories: Media, News, Press
March 21, 2019 3:21 p.m. EST Burlington, Mass. – As millions all over the world celebrate World Down Syndrome Day on March 21, two non-profit organizations are taking it one step further. LuMind Research Down Syndrome Foundation (LuMind RDS) and the International Down Syndrome Community (IDSC) announced today that they have combined operations, effectively merging …

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