May
5
Sun
2019 Flying Pig Race Series
May 5 all-day

Join LuMind RDS Runners at the Flying Pig Race Series on May 5th!

The Cincinnati Flying Pig Marathon is a beautiful course, which flies along the streets of Cincinnati, Covington, Newport, Mariemont, Fairfax, and Columbia Township. Join us for the 5K, 10K, Half, Full, or Relay Marathon.

Click here to learn more about Flying Pig Race Series 

Jun
27
Thu
National Down Syndrome Congress (NDSC) Conference 2019 @ David L. Lawrence Convention Center – Pittsburgh
Jun 27 – Jun 30 all-day

 

National Down Syndrome Congress

June 27-30, 2019

Pittsburg, PA

David Lawrence Convention Center

 

LuMind IDSC is proud to be the RESEARCH RALLY sponsor of the 2019 NDSC Conference. We are looking forward to reuniting with family and friends on June 27th in Pittsburg to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.  The LuMind IDSC booth is located at 100.  Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.

 

Friday, June 28, 1:30-3:00pm

Dr. James Hendrix (CSO) and Hampus Hillerstrom (CEO) are leading a presentation on Leading the Way in Down Syndrome Research: Why We Should Be Excited About The Future.  The presentation will be held in the City View Room 320, 3rd Floor.

 

Saturday June 29th, 7:00-9:00am

Start your Saturday at the LuMind IDSC Research Rally from 7-9am with a Q&A panel featuring DSMIG clinicians, breakfast bar, and opportunities to learn more about research with rally themed games and activities. The Research Rally is located in Ballroom B & C on the 3rd Floor.

Online Registration for the Research Rally is closed at this time.  If you would still like to join us Saturday morning please stop by booth 100 and sign up.

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.

 

 

Sep
6
Fri
2019 DSDN Rockin’ Mom Retreat @ Gaylord Opryland Resort & Convention Center
Sep 6 – Sep 7 all-day

LuMind IDSC will be sharing a booth with SPECS4US!!

 

Stop by and learn what’s new on Down syndrome research while trying on a pair of glasses with extra-wide frame fronts and a lowered bridge. If you are unable to stop by the booth you can find our live organization panel on DSDN’s Facebook or Instagram pages.

For more information on the conference contact DSDN at info@dsdiagnosisnetwork.org

 

 

Sep
29
Sun
Berlin Marathon
Sep 29 all-day

 

Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.

 

For further information or to find out what other races we are involved in please email runfords@lumindidsc.org.

Oct
13
Sun
2019 Bank of America Chicago Marathon
Oct 13 all-day

Chicago is one of the world’s most popular marathons and LuMind IDSC has a full team!!!

Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.

 

If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email runfords@lumindidsc.org.  Didn’t get in this year fill out the following survey to submit your entry for 2020!!

Oct
19
Sat
2019 Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMind IDSC at the 34th DS ACT Convention on October 19th at the
Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind IDSC initiatives for the Down syndrome community.

James Hendrix, Ph.D., will also be speaking at the social hour at 3:45.  Dr. Hendix will be presenting on how the momentum around research for Down syndrome has grown dramatically in recent years. The NIH, the pharmaceutical industry, researchers and clinicians, research-focused foundations, and families are increasingly rallying behind research to spur new treatment options for our loved ones with Down syndrome. There are many novel, promising activities in Alzheimer’s disease, sleep apnea, autoimmune conditions and more.  We are entering a time where families and affiliates are now adding research to their most important topics along with education, early intervention inclusion, and advocacy.

He will also provide an update on some research advances, including work supported by the LuMind IDSC Foundation. He will also share reasons and resources for families to rally behind Down syndrome research. Dr. Hendrix is also happy to take questions on Down syndrome research.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMind IDSC and for the conference committee for their exceptional work organizing this conference.

 

 

Nov
2
Sat
DSACO Down Syndrome Research Symposium @ Marriott Columbus University Area
Nov 2 @ 8:30 am – 12:00 pm
Nov
3
Sun
2019 TCS New York City Marathon
Nov 3 all-day

 

Thank you to the LuMind IDSC Team who are running at the New York City Marathon on November 3th!

Come down to our cheering station and cheer our runners on please email runfords@lumindidsc.org to get more information.

 

https://www.crowdrise.com/o/en/campaign/lumind-research-down-syndrome-foundation-nyc-2019

Nov
16
Sat
North Carolina Down Syndrome Conference @ Northern Wake Tech
Nov 16 @ 8:30 am – 4:30 pm

The 2019 North Carolina Down Syndrome Conference covers the lifespan of an individual with Down syndrome and is a valuable resource serving all audiences. The conference includes a plenary speaker, resource exhibits, networking lunch, and 18 breakout sessions that bring information and resources to families, educators, healthcare providers, and older teens and adults with Down syndrome.

Nov
19
Tue
Kansas City Down Syndrome Guild Down Syndrome Research Update @ DSG Office
Nov 19 @ 6:00 pm – 7:30 pm

LuMind IDSC Foundation Chief Executive Officer Hampus Hillerstrom and Chief Scientific Officer Dr. James Hendrix will be sharing important information about critical research being conducted to improve the lives of people with Down syndrome.