Jun
27
Thu
National Down Syndrome Congress (NDSC) Conference 2019 @ David L. Lawrence Convention Center – Pittsburgh
Jun 27 – Jun 30 all-day

 

National Down Syndrome Congress

June 27-30, 2019

Pittsburg, PA

David Lawrence Convention Center

 

LuMind IDSC is proud to be the RESEARCH RALLY sponsor of the 2019 NDSC Conference. We are looking forward to reuniting with family and friends on June 27th in Pittsburg to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.  The LuMind IDSC booth is located at 100.  Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.

 

Friday, June 28, 1:30-3:00pm

Dr. James Hendrix (CSO) and Hampus Hillerstrom (CEO) are leading a presentation on Leading the Way in Down Syndrome Research: Why We Should Be Excited About The Future.  The presentation will be held in the City View Room 320, 3rd Floor.

 

Saturday June 29th, 7:00-9:00am

Start your Saturday at the LuMind IDSC Research Rally from 7-9am with a Q&A panel featuring DSMIG clinicians, breakfast bar, and opportunities to learn more about research with rally themed games and activities. The Research Rally is located in Ballroom B & C on the 3rd Floor.

Online Registration for the Research Rally is closed at this time.  If you would still like to join us Saturday morning please stop by booth 100 and sign up.

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.

 

 

Aug
3
Sat
Bags 4 Breakthroughs @ Scarlet Lane Brewing Company
Aug 3 @ 1:00 pm – 7:00 pm

2nd Bags for BREAKTHROUGHS Cornhole Tournament.

August 3th Doors Open at 1pm

Scarlet Lane Brewing Company

McCordsville, IN

Team Registration and Sponsorship Info:

http://events.lumindrds.org/B4B

We’ll start at 1pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.
 Food and beverages will be available for purchase.
Don’t have to throw the bags to join in on the food, beer and music.  Come down and cheer on the teams and enter in to win one of our spectacular baskets up for grabs!!!

You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome

The Summer Double Dip
Aug 3 @ 5:00 pm – 10:00 pm

3rd Annual summer soirée benefitting
LuMind IDSC Foundation and The IDEAL School

August 3, 2019

5-10 pm
East Hampton, NY

To find out more about this event or make a donation please go to The Summer Double Dip webpage.

Children and adults with Down syndrome impress us everyday as they work hard to overcome challenges with health, learning, memory and speech at home, school and work. Your donation today advances the work of two organizations that are helping individuals with Down syndrome achieve their very best through education and research.

LuMind IDSC Foundation aims to improve health and independence for millions of people with Down syndrome worldwide through cutting-edge science to prevent Alzheimer’s onset, improve cognition, develop gene therapies and advance understanding.

Founded in 2004, LuMind RDS has granted $20 million to research that has led to additional NIH funding, the discovery of 10 therapeutic targets, 2 Down syndrome-specific cognitive assessment scales, and 14 interventional and observational clinical trials in 1300 participants. In 2017, LuMind IDSC launched the first Down Syndrome Clinical Trials Consortium planning effort to enable testing of promising treatments for Alzheimer’s currently in development for the general Alzheimer’s population also in large scale clinical trials in individuals with Down syndrome. We encourage you to visit https://www.lumindIDSC.org/ to learn more about the research that is ready to make a difference.

Logo for SDD

The IDEAL School of Manhattan, where Troy is a student, is a nurturing environment that values diversity and includes students from a variety of socioeconomic, religious, and ethnic backgrounds. They embrace the learning opportunities that are created by working with students of varied learning profiles, talents, and interests.

Visit https://www.theidealschool.org/ to see how your donation can make an impact for so many students in their school.

 

Sep
6
Fri
2019 DSDN Rockin’ Mom Retreat @ Gaylord Opryland Resort & Convention Center
Sep 6 – Sep 7 all-day

LuMind IDSC will be sharing a booth with SPECS4US!!

 

Stop by and learn what’s new on Down syndrome research while trying on a pair of glasses with extra-wide frame fronts and a lowered bridge. If you are unable to stop by the booth you can find our live organization panel on DSDN’s Facebook or Instagram pages.

For more information on the conference contact DSDN at info@dsdiagnosisnetwork.org

 

 

Sep
27
Fri
9th Annual Ashley Rose Classic @ Bull Run Golf Club
Sep 27 all-day

September 27, 2019

Bull Run Golf Club

Haymarket, VA

Please join us for the 9th Annual Ashley Rose Classic to benefit the LuMind IDSC Foundation on September 27, 2019 (Shotgun Start 9:00am). The LuMind IDSC is a charitable organization whose mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome in order that they:

• participate more successfully in school;
• lead more active and independent lives;
• and avoid the early onset of Alzheimer’s Disease.

We will have a great day of golf at the beautiful Bull Run Golf Club in Haymarket, VA (www.golfbullrun.com). The event will include the following:

  • 4-person scramble
  • Continental Breakfast
  • Box Lunch
  • Beverage Cart
  • Putting Challenge
  • Longest Drive Prize
  • Closest to the Pin Prize
  • Cocktail Hour
  • Awards Dinner
  • 50-50 Raffle
  • 1st and 2nd place prizes
  • Silent Auction


Special Offer: Included with your online registration is a 1-year subscription to Golf Digest (a $10 value). Click here for offer and refund details.

 

Oct
7
Mon
Tee Up For Down Syndrome Golf Classic @ The Oaks Golf Links
Oct 7 @ 7:30 am – 2:00 pm

We are getting TOGETHER to make a difference!
To register your foursome or sponsorship please go to
http://events.lumindrds.org/teeup4dsgolf

 

Oct
13
Sun
2019 Bank of America Chicago Marathon
Oct 13 all-day

Chicago is one of the world’s most popular marathons and LuMind IDSC has a full team!!!

Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.

 

If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email runfords@lumindidsc.org.  Didn’t get in this year fill out the following survey to submit your entry for 2020!!

Oct
19
Sat
2019 Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMind IDSC at the 34th DS ACT Convention on October 19th at the
Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind IDSC initiatives for the Down syndrome community.

James Hendrix, Ph.D., will also be speaking at the social hour at 3:45.  Dr. Hendix will be presenting on how the momentum around research for Down syndrome has grown dramatically in recent years. The NIH, the pharmaceutical industry, researchers and clinicians, research-focused foundations, and families are increasingly rallying behind research to spur new treatment options for our loved ones with Down syndrome. There are many novel, promising activities in Alzheimer’s disease, sleep apnea, autoimmune conditions and more.  We are entering a time where families and affiliates are now adding research to their most important topics along with education, early intervention inclusion, and advocacy.

He will also provide an update on some research advances, including work supported by the LuMind IDSC Foundation. He will also share reasons and resources for families to rally behind Down syndrome research. Dr. Hendrix is also happy to take questions on Down syndrome research.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMind IDSC and for the conference committee for their exceptional work organizing this conference.

 

 

Nov
2
Sat
DSACO Down Syndrome Research Symposium @ Marriott Columbus University Area
Nov 2 @ 8:30 am – 12:00 pm
Nov
3
Sun
2019 TCS New York City Marathon
Nov 3 all-day

 

Thank you to the LuMind IDSC Team who are running at the New York City Marathon on November 3th!

Come down to our cheering station and cheer our runners on please email runfords@lumindidsc.org to get more information.

 

https://www.crowdrise.com/o/en/campaign/lumind-research-down-syndrome-foundation-nyc-2019