June 27-30, 2019
David Lawrence Convention Center
LuMind IDSC is proud to be the RESEARCH RALLY sponsor of the 2019 NDSC Conference. We are looking forward to reuniting with family and friends on June 27th in Pittsburg to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. The LuMind IDSC booth is located at 100. Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.
Friday, June 28, 1:30-3:00pm
Dr. James Hendrix (CSO) and Hampus Hillerstrom (CEO) are leading a presentation on Leading the Way in Down Syndrome Research: Why We Should Be Excited About The Future. The presentation will be held in the City View Room 320, 3rd Floor.
Saturday June 29th, 7:00-9:00am
Start your Saturday at the LuMind IDSC Research Rally from 7-9am with a Q&A panel featuring DSMIG clinicians, breakfast bar, and opportunities to learn more about research with rally themed games and activities. The Research Rally is located in Ballroom B & C on the 3rd Floor.
Online Registration for the Research Rally is closed at this time. If you would still like to join us Saturday morning please stop by booth 100 and sign up.
To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.
2nd Bags for BREAKTHROUGHS Cornhole Tournament.
August 3th Doors Open at 1pm
Scarlet Lane Brewing Company
Team Registration and Sponsorship Info:
|We’ll start at 1pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.|
|Food and beverages will be available for purchase.|
|Don’t have to throw the bags to join in on the food, beer and music. Come down and cheer on the teams and enter in to win one of our spectacular baskets up for grabs!!!
You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome
3rd Annual summer soirée benefitting
LuMind IDSC Foundation and The IDEAL School
August 3, 2019
East Hampton, NY
To find out more about this event or make a donation please go to The Summer Double Dip webpage.
Children and adults with Down syndrome impress us everyday as they work hard to overcome challenges with health, learning, memory and speech at home, school and work. Your donation today advances the work of two organizations that are helping individuals with Down syndrome achieve their very best through education and research.
LuMind IDSC Foundation aims to improve health and independence for millions of people with Down syndrome worldwide through cutting-edge science to prevent Alzheimer’s onset, improve cognition, develop gene therapies and advance understanding.
Founded in 2004, LuMind RDS has granted $20 million to research that has led to additional NIH funding, the discovery of 10 therapeutic targets, 2 Down syndrome-specific cognitive assessment scales, and 14 interventional and observational clinical trials in 1300 participants. In 2017, LuMind IDSC launched the first Down Syndrome Clinical Trials Consortium planning effort to enable testing of promising treatments for Alzheimer’s currently in development for the general Alzheimer’s population also in large scale clinical trials in individuals with Down syndrome. We encourage you to visit https://www.lumindIDSC.org/ to learn more about the research that is ready to make a difference.
The IDEAL School of Manhattan, where Troy is a student, is a nurturing environment that values diversity and includes students from a variety of socioeconomic, religious, and ethnic backgrounds. They embrace the learning opportunities that are created by working with students of varied learning profiles, talents, and interests.
Visit https://www.theidealschool.org/ to see how your donation can make an impact for so many students in their school.
LuMind IDSC will be sharing a booth with SPECS4US!!
Stop by and learn what’s new on Down syndrome research while trying on a pair of glasses with extra-wide frame fronts and a lowered bridge. If you are unable to stop by the booth you can find our live organization panel on DSDN’s Facebook or Instagram pages.
For more information on the conference contact DSDN at firstname.lastname@example.org
September 27, 2019
Bull Run Golf Club
Please join us for the 9th Annual Ashley Rose Classic to benefit the LuMind IDSC Foundation on September 27, 2019 (Shotgun Start 9:00am). The LuMind IDSC is a charitable organization whose mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome in order that they:
• participate more successfully in school;
• lead more active and independent lives;
• and avoid the early onset of Alzheimer’s Disease.
We will have a great day of golf at the beautiful Bull Run Golf Club in Haymarket, VA (www.golfbullrun.com). The event will include the following:
- 4-person scramble
- Continental Breakfast
- Box Lunch
- Beverage Cart
- Putting Challenge
- Longest Drive Prize
- Closest to the Pin Prize
- Cocktail Hour
- Awards Dinner
- 50-50 Raffle
- 1st and 2nd place prizes
- Silent Auction
Special Offer: Included with your online registration is a 1-year subscription to Golf Digest (a $10 value). Click here for offer and refund details.
Chicago is one of the world’s most popular marathons and LuMind IDSC has a full team!!!
Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.
If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email email@example.com. Didn’t get in this year fill out the following survey to submit your entry for 2020!!
Join LuMind IDSC at the 34th DS ACT Convention on October 19th at the
Water’s Edge Resort and Spa
Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind IDSC initiatives for the Down syndrome community.
James Hendrix, Ph.D., will also be speaking at the social hour at 3:45. Dr. Hendix will be presenting on how the momentum around research for Down syndrome has grown dramatically in recent years. The NIH, the pharmaceutical industry, researchers and clinicians, research-focused foundations, and families are increasingly rallying behind research to spur new treatment options for our loved ones with Down syndrome. There are many novel, promising activities in Alzheimer’s disease, sleep apnea, autoimmune conditions and more. We are entering a time where families and affiliates are now adding research to their most important topics along with education, early intervention inclusion, and advocacy.
He will also provide an update on some research advances, including work supported by the LuMind IDSC Foundation. He will also share reasons and resources for families to rally behind Down syndrome research. Dr. Hendrix is also happy to take questions on Down syndrome research.
To find out more information about the conference, go to the DS ACT website at mydsact.org Our thanks to DS ACT for inviting LuMind IDSC and for the conference committee for their exceptional work organizing this conference.
Thank you to the LuMind IDSC Team who are running at the New York City Marathon on November 3th!
Come down to our cheering station and cheer our runners on please email firstname.lastname@example.org to get more information.