Mar
20
Wed
The Up of Down: An Insight Into the World of Down Syndrome @ NYU Winthrop Research & Academic Conference Center
Mar 20 @ 1:30 pm

You’re invited to the Conference on the

Progress of Down Syndrome Research

Wednesday, March 20, 2019

We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.

The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.

Keynote Speaker

  Roger Reeves, PhD.

Rethinking Alzheimer Disease in the Context of Down Syndrome

William Mobley, MD, PhD

Gene Dosage in Cellular Models of Trisomy 21

Stefan Pinter, PhD

Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)

Christopher Hartnick, MD, MS

Learning Objectives

At the end of this symposium, learners should be able to:

• Discuss improvements in learning and memory in individuals with Down syndrome

• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome

• Explain research findings regarding cellular models

• Discuss common developmental and behavioral observations of individuals with Down syndrome

• Identify medical predispositions in individuals with Down syndrome

• Benefits of Hypoglossal Nerve Stimulation

• Discuss the effects of Down syndrome on the immune system

 

Please register at winthrop.cloud-cme.com

SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center

Main Level

101 Mineola Boulevard

Mineola, NY 11501

Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.

Mar
23
Sat
MDSC 2019 Annual Conference @ DCU Center
Mar 23 @ 8:00 am – 4:30 pm

Shaping the Future: The State of Down Syndrome Research Today

The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.

We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.

This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:

innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives

the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease

information on the latest groundbreaking research into “silencing the extra chromosome.”

how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.

The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.

To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.

Jun
27
Thu
National Down Syndrome Congress (NDSC) Conference 2019 @ David L. Lawrence Convention Center – Pittsburgh
Jun 27 – Jun 30 all-day

 

National Down Syndrome Congress

June 27-30, 2019

Pittsburg, PA

David Lawrence Convention Center

 

LuMind IDSC is proud to be the RESEARCH RALLY sponsor of the 2019 NDSC Conference. We are looking forward to reuniting with family and friends on June 27th in Pittsburg to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.  The LuMind IDSC booth is located at 100.  Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.

 

Friday, June 28, 1:30-3:00pm

Dr. James Hendrix (CSO) and Hampus Hillerstrom (CEO) are leading a presentation on Leading the Way in Down Syndrome Research: Why We Should Be Excited About The Future.  The presentation will be held in the City View Room 320, 3rd Floor.

 

Saturday June 29th, 7:00-9:00am

Start your Saturday at the LuMind IDSC Research Rally from 7-9am with a Q&A panel featuring DSMIG clinicians, breakfast bar, and opportunities to learn more about research with rally themed games and activities. The Research Rally is located in Ballroom B & C on the 3rd Floor.

Online Registration for the Research Rally is closed at this time.  If you would still like to join us Saturday morning please stop by booth 100 and sign up.

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.

 

 

Sep
6
Fri
2019 DSDN Rockin’ Mom Retreat @ Gaylord Opryland Resort & Convention Center
Sep 6 – Sep 7 all-day

LuMind IDSC will be sharing a booth with SPECS4US!!

 

Stop by and learn what’s new on Down syndrome research while trying on a pair of glasses with extra-wide frame fronts and a lowered bridge. If you are unable to stop by the booth you can find our live organization panel on DSDN’s Facebook or Instagram pages.

For more information on the conference contact DSDN at info@dsdiagnosisnetwork.org

 

 

Sep
27
Fri
9th Annual Ashley Rose Classic @ Bull Run Golf Club
Sep 27 all-day

September 27, 2019

Bull Run Golf Club

Haymarket, VA

Please join us for the 9th Annual Ashley Rose Classic to benefit the LuMind IDSC Foundation on September 27, 2019 (Shotgun Start 9:00am). The LuMind IDSC is a charitable organization whose mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome in order that they:

• participate more successfully in school;
• lead more active and independent lives;
• and avoid the early onset of Alzheimer’s Disease.

We will have a great day of golf at the beautiful Bull Run Golf Club in Haymarket, VA (www.golfbullrun.com). The event will include the following:

  • 4-person scramble
  • Continental Breakfast
  • Box Lunch
  • Beverage Cart
  • Putting Challenge
  • Longest Drive Prize
  • Closest to the Pin Prize
  • Cocktail Hour
  • Awards Dinner
  • 50-50 Raffle
  • 1st and 2nd place prizes
  • Silent Auction


Special Offer: Included with your online registration is a 1-year subscription to Golf Digest (a $10 value). Click here for offer and refund details.

 

Oct
7
Mon
Tee Up For Down Syndrome Golf Classic @ The Oaks Golf Links
Oct 7 @ 7:30 am – 2:00 pm

We are getting TOGETHER to make a difference!
To register your foursome or sponsorship please go to
http://events.lumindrds.org/teeup4dsgolf

 

Oct
19
Sat
2019 Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMind IDSC at the 34th DS ACT Convention on October 19th at the
Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind IDSC initiatives for the Down syndrome community.

James Hendrix, Ph.D., will also be speaking at the social hour at 3:45.  Dr. Hendix will be presenting on how the momentum around research for Down syndrome has grown dramatically in recent years. The NIH, the pharmaceutical industry, researchers and clinicians, research-focused foundations, and families are increasingly rallying behind research to spur new treatment options for our loved ones with Down syndrome. There are many novel, promising activities in Alzheimer’s disease, sleep apnea, autoimmune conditions and more.  We are entering a time where families and affiliates are now adding research to their most important topics along with education, early intervention inclusion, and advocacy.

He will also provide an update on some research advances, including work supported by the LuMind IDSC Foundation. He will also share reasons and resources for families to rally behind Down syndrome research. Dr. Hendrix is also happy to take questions on Down syndrome research.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMind IDSC and for the conference committee for their exceptional work organizing this conference.

 

 

Nov
2
Sat
DSACO Down Syndrome Research Symposium @ Marriott Columbus University Area
Nov 2 @ 8:30 am – 12:00 pm
Nov
16
Sat
North Carolina Down Syndrome Conference @ Northern Wake Tech
Nov 16 @ 8:30 am – 4:30 pm

The 2019 North Carolina Down Syndrome Conference covers the lifespan of an individual with Down syndrome and is a valuable resource serving all audiences. The conference includes a plenary speaker, resource exhibits, networking lunch, and 18 breakout sessions that bring information and resources to families, educators, healthcare providers, and older teens and adults with Down syndrome.

Nov
19
Tue
Kansas City Down Syndrome Guild Down Syndrome Research Update @ DSG Office
Nov 19 @ 6:00 pm – 7:30 pm

LuMind IDSC Foundation Chief Executive Officer Hampus Hillerstrom and Chief Scientific Officer Dr. James Hendrix will be sharing important information about critical research being conducted to improve the lives of people with Down syndrome.