Nov
19
Tue
Kansas City Down Syndrome Guild Down Syndrome Research Update @ DSG Office
Nov 19 @ 6:00 pm – 7:30 pm

LuMind IDSC Foundation Chief Executive Officer Hampus Hillerstrom and Chief Scientific Officer Dr. James Hendrix will be sharing important information about critical research being conducted to improve the lives of people with Down syndrome.

Nov
20
Wed
Webinar – Maximizing Cognitive Development in Down Syndrome
Nov 20 @ 1:00 pm – 2:30 pm

Presenter: Jamie Edgin, Ph.D

Dr. Jamie Edgin is a tenured Associate Professor and Co-Director of the Cognition and Neural Systems Program in the Department of Psychology at the University of Arizona. Her research centers on understanding the neurological basis for sleep, memory, and language impairment in developmental disorders, particularly Down syndrome (DS) and autism. She has received several awards for her work in intellectual and developmental disabilities, including the 2018 University of Arizona Koffler Prize, the Charles Epstein award from the National Down Syndrome Society, and the Inaugural David Cox “Rising Star” award from the LuMind IDSC Foundation. She is an expert in Developmental Cognitive Neuroscience, with several published works on sleep, memory, and neuroimaging in typical children, DS, and other at-risk groups. She has >40 published papers employing sleep and neurocognitive assessment, EEG/ERP, fMRI, and eyetracking methodologies in these populations. She serves on several editorial boards for leading national and international journals focused on developmental disability and regularly participates in grant review for various granting agencies. Dr. Edgin’s team has just finished data collection on the first longitudinal study to examine sleep disturbance and development in infants and toddlers with DS from 6-24 months of age. Further, she currently leads a NIH-funded multisite study to design and validate a new neuropsychological assessment tool for use in intellectual disabilities, the “Arizona Memory Assessment for Preschoolers and Special Populations.” She was instrumental in the design and validation of one important battery of cognitive tests validated specifically for use in DS: The Arizona Cognitive Test Battery.

Dec
4
Wed
Clinical Trials on Alzheimer’s Disease @ Hilton Bayfront San Diego
Dec 4 @ 4:00 pm – Dec 8 @ 2:30 pm

The development of the next generation of Alzheimer’s disease treatments is among the most important health needs worldwide, but presents huge challenges. The goal of the meeting is to bring together today’s worldwide leaders in the treatment of Alzheimer’s disease to discuss new results, candidate therapeutics, and methodological issues important to the development of the next generation of Alzheimer’s disease treatments.

Clinical trial teams from worldwide centers will report on their efforts to identify new biomarkers of disease as well as more sensitive clinical assessment tools to identify those at risk for AD, to predict progression, and assess the effectiveness of new treatments.

The future of clinical trials may lie in revisiting all drugs known to be safe and evaluate their relevance in AD treatment. We learned at CTAD 2018 of the importance of non-pharmaceutical trials and that anti-amyloid treatment for AD should begin early on in the disease process. Furthermore we also learned more of another pathway with Tau Biomarkers, and their implications for AD along with combination therapeutics and phase 3 clinical trials results. Again in 2019 Clinical teams will present their population studies on subjects in the early stage of the disease or even at the asymptomatic stage.

CTAD 2019 will highlight the latest on trying to get these trials off the ground.

Overall, the aim of the conference is to overcome the hurdles and speed the development of effective treatments.

Jan
16
Thu
Webinar – Discovering Patterns of Change in Cognition to Empower Treatment Research
Jan 16 @ 1:00 pm – 2:30 pm

Presenter:
Prof. Judith Jaeger
PhD, MPA, President and Principal Scientist at CognitionMetrics, LLC

Dr. Jaeger is an internationally recognized clinical neuropsychologist and pharmaceutical executive. She was previously the Vice President for Clinical Trials at Cogstate, Inc, and Director Clinical Development at AstraZeneca Pharmaceuticals, Inc.
– Clinical and pharmaceutical development expert on cognitive, psychiatric and neurological disorders
– Sought after key opinion leader and scientific consultant to most (14 of top 25) major pharma companies and several CRO’s and biotechs working in neuroscience.

Jan
18
Sat
8th Annual Funding Futures Chicago @ Fitzgerald's
Jan 18 @ 7:00 pm

 

Fitzgerald’s

6615 W Roosevelt

Berwyn, IL 60402

 

Join us at the 8th Annual Funding Futures Chicago Event!

To purchase tickets please click here!!

If you’re or under, use promo code UNDER25

 

Feb
21
Fri
8th Annual Night of Arts and Blues @ The Brick
Feb 21 @ 8:00 pm

 

Arts N Blues

 

A Night of Art & Blues is a fundraiser to raise money for cognitive research on Down Syndrome.  All money raised will be donated to the LuMind IDSC Foundation.

The night will be a cocktail-formal affair, with a live blues band, great food, original art, an open bar, and a lot of fun.

Tickets are $75 each or $125 for two tickets. You can buy tickets (or donate in lieu of buying tickets) by clicking on the link below.

TICKETS

 

Feb
27
Thu
Down Syndrome Affiliates In Action (DSAIA) 2020 Conference @ Rosen Plaza
Feb 27 – Mar 1 all-day

 

DSAIA

LuMind IDSC Foundation is proud to be a Bronze sponsor of the 2020 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 27th in sunny Orlando, Florida to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMind IDSC Foundation @ Booth # 5 to learn more about the exciting research, LIFE-DSR and the new LuMind IDSC initiatives for the Down syndrome community.

Join Our Workshops

 

To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.

Mar
15
Sun
2020 New York City Half Marathon
Mar 15 all-day

 

 

Run through Time Square and into Central Park on March 15th while raising funds for LuMind IDSC. LuMind IDSC’s fundraising minimum for the NYC 1/2 is $1,000. For more information please contact Becca at runfords@lumindids.org

Click here to learn more about United Airlines NYC Half Marathon

Mar
19
Thu
World Down Syndrome Day 2020 – Watch Me Soar
Mar 19 – Mar 27 all-day

World Down Syndrome Day (WDSD) is a global awareness day selected to signify the uniqueness of the three copies of the 21st chromosome. Join us in celebrating individuals with Down syndrome and their accomplishments. Let’s show the world how they soar!

Please visit www.lumindidsc.org/soar for more information.

 

Mar
28
Sat
MDSC 2020 Annual Conference – Cancelled @ DCU Center
Mar 28 @ 8:00 am – 4:30 pm

Important Announcement Regarding Coronavirus and 2020 MDSC Conference

After careful consideration, MDSC has made the difficult decision to cancel our 36th Annual Conference on March 28, 2020 at the DCU Center due to risks associated with the coronavirus.

Our decision to cancel our flagship educational event was not taken lightly. It was made after closely monitoring updates and recommendations from the MA Department of Public Health and Centers for Disease Control and Prevention (CDC), and after conferring with MDSC leadership, including our Board chair and the chair of our Medical and Scientific Advisory Council.

Ultimately, our top priority, at our Annual Conference and all MDSC events and gatherings, is our members’ and participants’ health and safety.

Although we are all incredibly disappointed about this news, we are already discussing the development of a Virtual Annual Conference, which will include speaker presentations, so that our members can have access to the important resources and information that have already been prepared.

This is a first for us. In the three and half decades of MDSC’s Annual conference, we have never NOT held the event live and in person to learn together and celebrate our loved ones with Down syndrome. We truly appreciate your support and understanding as we respond to this public health crisis that is emerging.  The safety and well-being our of our members is our #1 priority.

As the late disability advocacy pioneer Dr. Allen Crocker used to say, our community is resilient and we will “Carry On!”

Stay tuned to our website, social media channels and your email inbox for more information as plans for our Virtual Annual Conference evolve.

Please contact us at conference2020@mdsc.org if you have any questions.

LuMind IDSC is happy to help sponsor the MDSC 36th Annual Conference.

 

MDSC is proud to announce its Trailblazers theme for the 2020 Down syndrome conference!

For the past 36 years, the MDSC and our families have been paving the way to a brighter future for our loved ones with Down syndrome.

Driven by a profound need to give all people with Down syndrome the best life possible, we have forged a path forward using every tool available — communication, collaboration, advocacy, education, and, ultimately, by standing up for what’s right.

Along the way, we have empowered people with Down syndrome to become effective self advocates, ensured that they have access to high quality education, medical services, research and employment opportunities, provided critical networking and supports, and worked day in and day out to raise awareness in our neighborhoods, hospitals, schools and communities.

For decades now, we have been powerful trailblazers, both individually and collectively, truly altering public perceptions, raising expectations and improving the lives of our loved ones with Down syndrome and our society for the better.

Join us in 2020 as we honor this legacy and consider how we will continue trailblazing an even brighter future for decades to come.

Workshops include:
New Parents: Sharing Our Stories

Pathways to Employment and Adult Life
Differentiated Instruction
Translating Down syndrome Neuroscience Research into Humans
What Should You Consider When Deciding to Participate in Research?The Possible Futures of Education
Behavioral Therapy for Children with Down syndrome: Advocacy and Research Updates
Accelerating Research in Down syndrome
Connecting Families and Those with Down syndrome to Research that INCLUDEs Them
New Frontiers in Voice Technology: How Machines are Learning to Understand and Replicate our Voices
Grandparents: Sharing and Caring
Keeping You Healthy: Medical Updates for Adults
Alzheimer’s Disease in Down syndrome: What We Know, What Gives Us Hope for the Future
Physical Fitness and Sports Nutrition for People with Down syndrome
Medical and Neurodevelopmental Conditions in Children and Adolescents with Down syndrome
Crafting Slam Style Stories
For detailed workshop descriptions, click here.
With the help of the National Down Syndrome Society, their Presenting Sponsor, they will not only help make sense of what’s to come, but they will help families feel confident and empowered to navigate the research world in 2020 and beyond.