Sep
27
Fri
9th Annual Ashley Rose Classic @ Bull Run Golf Club
Sep 27 all-day

September 27, 2019

Bull Run Golf Club

Haymarket, VA

Please join us for the 9th Annual Ashley Rose Classic to benefit the LuMind IDSC Foundation on September 27, 2019 (Shotgun Start 9:00am). The LuMind IDSC is a charitable organization whose mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome in order that they:

• participate more successfully in school;
• lead more active and independent lives;
• and avoid the early onset of Alzheimer’s Disease.

We will have a great day of golf at the beautiful Bull Run Golf Club in Haymarket, VA (www.golfbullrun.com). The event will include the following:

  • 4-person scramble
  • Continental Breakfast
  • Box Lunch
  • Beverage Cart
  • Putting Challenge
  • Longest Drive Prize
  • Closest to the Pin Prize
  • Cocktail Hour
  • Awards Dinner
  • 50-50 Raffle
  • 1st and 2nd place prizes
  • Silent Auction


Special Offer: Included with your online registration is a 1-year subscription to Golf Digest (a $10 value). Click here for offer and refund details.

 

Webinar: “Connecting families and those with Down syndrome to research that INCLUDEs them”
Sep 27 @ 12:00 pm – 1:00 pm

 

 

 

 

“The National Institutes of Health (NIH) has a longstanding program of research in Down syndrome (DS) to improve the quality of life for those with DS. In fiscal year (FY) 2018, in response to a Congressional directive, NIH launched a new DS research initiative called INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE).

The INCLUDE project (https://www.nih.gov/include-project), is addressing critical health and quality-of-life needs for individuals with DS, focusing on co-occurring conditions, such as Alzheimer’s disease, cancer, cardiovascular disease, immune system dysregulation, and autism, among others. NIH dedicated an additional $22.7 million for INCLUDE research in FY2018, bolstering total funding for DS research to $60 million last year. NIH Staff will provide updates on DS research funding in FY2019, highlighting some of the new INCLUDE projects.

In addition, NIH supports DS-Connect®: The Down Syndrome Registry(https://DSConnect.nih.gov), an online resource which collects basic health information about people with DS and connects them with research opportunities of interest to them. NIH Staff will describe how families can join DS-Connect and participate in INCLUDE-related research projects. In this way, families can help us better understand DS and develop effective treatments for DS-related conditions by being part of DS-Connect and informing researchers about the issues that matter to them.”

The webinar is at 12 pm ET, 11 am CT, 10 am MT, 9 am PT on Friday, Sept. 27.

 

Sep
29
Sun
Berlin Marathon
Sep 29 all-day

 

Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.

 

For further information or to find out what other races we are involved in please email runfords@lumindidsc.org.

Oct
7
Mon
Tee Up For Down Syndrome Golf Classic @ The Oaks Golf Links
Oct 7 @ 7:30 am – 2:00 pm

We are getting TOGETHER to make a difference!
To register your foursome or sponsorship please go to
http://events.lumindrds.org/teeup4dsgolf

 

Oct
10
Thu
Webinar – Understanding and Supporting the Speech and Language Development of Individuals with Down Syndrome
Oct 10 @ 1:00 pm – 2:30 pm

Presenter: Leonard Abbeduto, PhD, is the Director of the UC Davis MIND Institute, the Tsakopoulos-Vismara Endowed Chair, and Professor of Psychiatry and Behavioral Sciences at the University of California, Davis. Dr. Abbeduto’s research is focused broadly on the development of language across the lifespan in individuals with neurodevelopmental disorders and the family context for language development. Dr. Abbeduto has published more than 190 articles, chapters, reviews, and books on Down syndrome, fragile X syndrome, autism, intellectual disabilities, and child development. His current research is focused on understanding variation in language outcomes in various neurodevelopmental disabilities, the measurement of treatment effects in clinical trials, and the use of distance technology in behavioral treatment. He serves as director of the NICHD-funded MIND Institute Intellectual and Developmental Disabilities Research Center. Dr. Abbeduto has received numerous awards, including the Steiger Award for Distinguished Teaching from the University of Wisconsin-Madison, the Faculty Stewardship Award from the University of California, Davis, the Enid and William Rosen Research Award from the National Fragile X Foundation, and the Edgar Doll Award for Distinguished Research Contributions from Division 33 of the American Psychological Association. He earned his PhD in psychology from the University of Illinois at Chicago in 1982.

Oct
13
Sun
2019 Bank of America Chicago Marathon
Oct 13 all-day

Chicago is one of the world’s most popular marathons and LuMind IDSC has a full team!!!

Visit our Crowdrise page to read the stories on why they run or to donate to the LuMind IDSC team to help raise money to support Down syndrome research.

 

If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email runfords@lumindidsc.org.  Didn’t get in this year fill out the following survey to submit your entry for 2020!!

Oct
19
Sat
2019 Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMind IDSC at the 34th DS ACT Convention on October 19th at the
Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind IDSC initiatives for the Down syndrome community.

James Hendrix, Ph.D., will also be speaking at the social hour at 3:45.  Dr. Hendix will be presenting on how the momentum around research for Down syndrome has grown dramatically in recent years. The NIH, the pharmaceutical industry, researchers and clinicians, research-focused foundations, and families are increasingly rallying behind research to spur new treatment options for our loved ones with Down syndrome. There are many novel, promising activities in Alzheimer’s disease, sleep apnea, autoimmune conditions and more.  We are entering a time where families and affiliates are now adding research to their most important topics along with education, early intervention inclusion, and advocacy.

He will also provide an update on some research advances, including work supported by the LuMind IDSC Foundation. He will also share reasons and resources for families to rally behind Down syndrome research. Dr. Hendrix is also happy to take questions on Down syndrome research.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMind IDSC and for the conference committee for their exceptional work organizing this conference.

 

 

Nov
2
Sat
DSACO Down Syndrome Research Symposium @ Marriott Columbus University Area
Nov 2 @ 8:30 am – 12:00 pm
Nov
3
Sun
2019 TCS New York City Marathon
Nov 3 all-day

 

Thank you to the LuMind IDSC Team who are running at the New York City Marathon on November 3th!

Come down to our cheering station and cheer our runners on please email runfords@lumindidsc.org to get more information.

 

https://www.crowdrise.com/o/en/campaign/lumind-research-down-syndrome-foundation-nyc-2019

Nov
16
Sat
North Carolina Down Syndrome Conference @ Northern Wake Tech
Nov 16 @ 8:30 am – 4:30 pm

The 2019 North Carolina Down Syndrome Conference covers the lifespan of an individual with Down syndrome and is a valuable resource serving all audiences. The conference includes a plenary speaker, resource exhibits, networking lunch, and 18 breakout sessions that bring information and resources to families, educators, healthcare providers, and older teens and adults with Down syndrome.