Mar
22
Tue
Dr. Harpold at the 321 eConference @ 321 eConference (online)
Mar 22 @ 10:00 am – 11:00 am
May
21
Sat
Sky’s the Limit – FREE Research Presentation @ Courtyard Marriott - Lake Union, Regatta Room
May 21 @ 10:30 am – 12:30 pm

Courtyard Marriott – Lake Union, Regatta Room

Parking is complimentary.

Please join us at a research seminar presented by:

  • Dr. Michael Harpold, Chief Scientific Officer of LuMind Research Down Syndrome Foundation,
  • Dr. Michael Rafii of the University of California, San Diego, and
  • Dr. Roger Reeves of Johns Hopkins University.

Learn about the latest in Down syndrome cognition research, including work on preventing losses due to early onset Alzheimer’s disease.

Jun
8
Thu
t21 Research Society Second International Meeting @ Feinberg Conference Center, Northwestern
Jun 8 @ 8:30 am – Jun 11 @ 4:30 pm
t21 Research Society Second International Meeting @ Feinberg Conference Center, Northwestern | Chicago | Illinois | United States

LuMind RDS Foundation is a Founding Sponsor of t21RS and a Main Sponsor of this year’s International Meeting in Chicago, IL where leaders in Down syndrome research gather. If you are attending, visit our table in the Poster Session area of the conference.

The t21RS International Conference is the largest biannual international Down syndrome meeting involving researchers and clinicians working on Down syndrome and is the first research society dedicated to research concerning all aspects of research from fundamental studies of gene dosage effects on development and function to clinical approaches to amelioration. t21RS has devised an excellent four day scientific program with top speakers in different clinical and basic research areas, including a plenary lecture by the new director of the National Institute of Child Health and Human Development, a Science and Society session to involve families and organizations supporting Ds to involve the latest research findings, and a number of outstanding symposia featuring leading scientists from around the world. A special one day symposium will focus on new developments in Ds and Alzheimer Disease.

Aug
26
Sat
Down Syndrome of Central Ohio Research Symposium @ Embassy Suites
Aug 26 @ 9:00 am – 6:00 pm

Down Syndrome Research Symposium | DSACO | Down Syndrome Association of Central Ohio

Saturday, August 26, 2017 | 9:00 a.m. – 1:30 p.m.

Embassy Suites Columbus Airport

2886 Airport Drive | Columbus, OH 43219

Fee: $10/Family

Hosted by:

Down Syndrome Syndrome Association of Central Ohio (DSACO)

in partnership with

National Down Syndrome Society (NDSS)

The Down Syndrome Project at Emory University

Join Board Member, Mike Mannor, Ph.D. at the @DSACO.Cbus Down Syndrome Research Symposium to learn about LuMind Research Down Syndrome Foundation’s mission, vision and values while highlighting our accomplishments, Research Agenda Expansion, Four Scientific Research Categories and the grants awarded this year.
Join researchers from near and far who explain their current research studies. This is an exciting time for the Down syndrome community as more studies are focusing on those issues that relate to Down syndrome and how to improve the quality of life. “Thank you, DSACO, for connecting Central Ohio families with the latest information on research. Like you, we believe Cognition And Research Empowers Success. #lumindrdsCARES.
Sep
8
Fri
DSDN Rockin’ Mom Retreat 2018 @ JW Marriott Desert Ridge Resort and Spa
Sep 8 – Sep 9 all-day

 

When?    September  7-9, 2018

Where?  JW Marriott Desert Ridge Resort and Spa, Phoenix, Arizona

Who?      Rockin’ Moms in DSDN groups

LuMind Research Down Syndrome Foundation is one of the sponsors at DSDN Rockn’ Mom’s Retreat this year along with many others.  Come join us and stop by our table for a little treat to help with your relaxing weekend.

Please contact Katie Coughlin to be a sponsor at the Rockin’ IT Glow Run presented by LuMindRDS on Thursday September 7th @7pm.  Please click on the following link to register for the Rockin’ IT Glow Run.

We want to to thank DSDN for inviting us to participate, because we believe Cognition And Research Empowers Success.

 

Feb
16
Fri
Florida Down Syndrome Conference 2018 @ Nemours Children's Hospital
Feb 16 – Feb 17 all-day

Down Syndrome Association of Central Florida is hosting the 11th Annual Florida Down Syndrome Conference at Nemours Children’s Hospital.

Keynote Speaker: Dr. William Mobley, PhD from University of California San Diego.

 

To register or for more information please go to www.DSACF.org

Apr
10
Tue
MDSC Adult Conference 2018 @ Bentley University
Apr 10 all-day

 

LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information go to www.mdsc.org.  Hope to see you there!!!

Aug
9
Thu
Research and Retreat Weekend 2018 @ Cincinnati Great Wolf Lodge
Aug 9 – Aug 12 all-day

Research and Retreat Weekend 2018

One weekend, one location, lots of families, activities, learning and fun– all the weekend of

August 9-12, 2018 at the Cincinnati Great Wolf Lodge!

IMDSA’s Research & Retreat is teaming up with the International Down Syndrome Coalition (IDSC) Family Weekend at the Cincinnati Great Wolf Lodge in Ohio. IMDSA and IDSC’s annual events are combining into one fabulous weekend!

Join LuMind RDS’ President and CEO, Hampus Hillerstom, on Saturday 8/11 at noon for his presentation, “On The Verge Of Breakthroughs”.

 For more information, visit https://www.imdsa.org/research-and-retreat

Mar
20
Wed
The Up of Down: An Insight Into the World of Down Syndrome @ NYU Winthrop Research & Academic Conference Center
Mar 20 @ 1:30 pm

You’re invited to the Conference on the

Progress of Down Syndrome Research

Wednesday, March 20, 2019

We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.

The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.

Keynote Speaker

  Roger Reeves, PhD.

Rethinking Alzheimer Disease in the Context of Down Syndrome

William Mobley, MD, PhD

Gene Dosage in Cellular Models of Trisomy 21

Stefan Pinter, PhD

Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)

Christopher Hartnick, MD, MS

Learning Objectives

At the end of this symposium, learners should be able to:

• Discuss improvements in learning and memory in individuals with Down syndrome

• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome

• Explain research findings regarding cellular models

• Discuss common developmental and behavioral observations of individuals with Down syndrome

• Identify medical predispositions in individuals with Down syndrome

• Benefits of Hypoglossal Nerve Stimulation

• Discuss the effects of Down syndrome on the immune system

 

Please register at winthrop.cloud-cme.com

SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center

Main Level

101 Mineola Boulevard

Mineola, NY 11501

Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.

Mar
23
Sat
MDSC 2019 Annual Conference @ DCU Center
Mar 23 @ 8:00 am – 4:30 pm

Shaping the Future: The State of Down Syndrome Research Today

The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.

We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.

This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:

innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives

the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease

information on the latest groundbreaking research into “silencing the extra chromosome.”

how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.

The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.

To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.