Down Syndrome Association of Central Florida is hosting the 11th Annual Florida Down Syndrome Conference at Nemours Children’s Hospital.
Keynote Speaker: Dr. William Mobley, PhD from University of California San Diego.
To register or for more information please go to www.DSACF.org
Dr. Tarik Haydar and Dr. Nadine Aziz
from the Boston University School of Medicine
Tuesday, March 20, 2018
3 p.m. EDT | 2 p.m. CDT | 12 p.m. MDT | 12 p.m. PDT
Join LuMind RDS with Dr. Tarik Haydar and Dr. Nadine Aziz to learn more about what is going on in the brain’s white matter, how it affects speed, signaling and processing in the brain. You will hear the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information.
Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
If you can’t join us, register today and receive a link to the recording after the live webinar!
Join us to learn what is going on in your white matter, how it affects speed, signaling and processing in the brain, and the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information. Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
About Dr. Tarik Haydar:
For the past 20 years, Dr. Haydar has dedicated himself to advancing our understanding of Down syndrome. As a PhD student at the University of Maryland, he worked with Dr. Bruce Krueger on brain development in the Ts16 mouse, the first mouse model of Down syndrome in 1997. He then completed a postdoctoral fellowship on cellular/molecular mechanisms of brain development at Yale University, working with Dr. Pasko Rakic.
Dr. Haydar returned to Down syndrome research in 2002 when he established an independent laboratory at the Children’s National Medical Center in Washington DC. Studying brain development of the Ts65Dn mouse model of Down syndrome, he determined that two triplicated genes (Olig1 and Olig2) may play a role in changing the balance of excitation and inhibition in the brains of people with Down syndrome. In 2010, Dr. Haydar moved to Boston University, where he is currently investigating the causes of changes in white matter production in the central nervous system in Down syndrome.
About Dr. Nadine Aziz:
Dr. Aziz is a postdoctoral associate at Boston University School of Medicine working in Dr. Haydar’s lab. She is interested in characterizing the determinants of proper central nervous system development and function during gestation. Specifically, She studies the etiology of atypical central nervous system development and its impact on cognition and motor function in Down syndrome. She is involved in multiple interrelated projects utilizing mouse models of Down syndrome.
Dr. Haydar’s research is funded by the NIH (NINDS and NICHD).
LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information go to www.mdsc.org. Hope to see you there!!!
Obstructive Sleep Apnea: Don’t let it get in the way of cognitive potential!
Live webinar with Dr. Brian Skotko from the Mass General Hospital Down Syndrome Program and Dr. Christopher Hartnick from Mass Eye and Ear
Wednesday, April 25, 2018
Don’t let obstructive sleep apnea (OSA) get in the way of cognitive potential! OSA occurs in nearly 3 out of every 4 people with Down syndrome. Symptoms are often silent, with no warning to caregivers and clinicians. Untreated sleep apnea may result in worsening medical issues and loss of cognitive functioning. Register now at http://bit.ly/321Sleep for this live webinar on April 25th to learn about the latest ways to detect apnea in persons with Down syndrome and new advances in how to treat obstructive sleep apnea led by Dr. Brian.Skotko from MGHDownSyndrome and Dr. Christopher Hartnick from MassEyeAndEar. A webinar not to be missed for every parent or caregiver!
Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.
May 31, 2018
Register at http://bit.ly/AlzBiomarkers4Ds
|Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
|Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford
June 26, 2018
Register at http://bit.ly/DsResearchFromStanfordU
The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.
We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.
Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!
Registration for the Napa to Sonoma Wine Country Half Marathon sold out! Missed out? No problem – we’ve saved you a spot.
Click here to learn more about Napa to Sonoma
Miles for Breakthroughs 5k
July 14th @7:30am
Trinity Skyline Trail
Join the LuMind RDS as we unite for a common cause and raise funds at the 2018 Miles for Breakthroughs 5K. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or just enjoy running for a great cause!
Make a difference. By joining LuMind RDS Runners and participating in the Miles for Breakthroughs 5K, your fundraising efforts will go directly to support results-driven research to improve health and independence in persons with Down syndrome all over the world.
Want to connect with other runners at this event and other LuMind RDS Runners events across the country? If you have a passion for staying in shape and a passion for someone with Down Syndrome, please join our facebook group!
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live music, food, drinks and a silent auction. Since the first event, FFC has raised over $700,000 for LuMind RDS, and continues to grow. On September 20, Funding Futures New York (FFNY) will make its debut at City Winery in New York City.
“We are excited to bring this event to another city,” says Margie Doyle, Director of Development at LuMind RDS and co-founder of FFC. “Over the last six years, we’ve created a community in Chicago that supports and propels the advancement of Down syndrome research, and we look forward to doing the same in New York.”
The September event will be organized by a new committee established in New York City, comprised of parents, friends and family of children with Down syndrome and LuMind RDS supporters. The committee members include Genevieve Shaw Brown, Rachel Adams, Joan O’Neil Ipsen, Austin Gordon, Joey Orfini, James Orfini and Katie Peraino.
Proceeds from the Funding Futures events support research projects funded by LuMind RDS to prevent Alzheimer’s onset, improve cognition, develop gene therapy and advance understanding. Since 2004, the Foundation has provided $17 million in grants to fund research for individuals with Down syndrome at top institutions including University of California San Diego, Stanford University, University of Arizona, Johns Hopkins, Emory, MIT, and UCONN Health.
For more information on Funding Futures, or if you are interested in joining the Chicago or New York committee, please visit www.fundingfutures.us.