Nov
19
Tue
Kansas City Down Syndrome Guild Down Syndrome Research Update @ DSG Office
Nov 19 @ 6:00 pm – 7:30 pm

LuMind IDSC Foundation Chief Executive Officer Hampus Hillerstrom and Chief Scientific Officer Dr. James Hendrix will be sharing important information about critical research being conducted to improve the lives of people with Down syndrome.

Nov
20
Wed
Webinar – Maximizing Cognitive Development in Down Syndrome
Nov 20 @ 1:00 pm – 2:30 pm

Presenter: Jamie Edgin, Ph.D

Dr. Jamie Edgin is a tenured Associate Professor and Co-Director of the Cognition and Neural Systems Program in the Department of Psychology at the University of Arizona. Her research centers on understanding the neurological basis for sleep, memory, and language impairment in developmental disorders, particularly Down syndrome (DS) and autism. She has received several awards for her work in intellectual and developmental disabilities, including the 2018 University of Arizona Koffler Prize, the Charles Epstein award from the National Down Syndrome Society, and the Inaugural David Cox “Rising Star” award from the LuMind IDSC Foundation. She is an expert in Developmental Cognitive Neuroscience, with several published works on sleep, memory, and neuroimaging in typical children, DS, and other at-risk groups. She has >40 published papers employing sleep and neurocognitive assessment, EEG/ERP, fMRI, and eyetracking methodologies in these populations. She serves on several editorial boards for leading national and international journals focused on developmental disability and regularly participates in grant review for various granting agencies. Dr. Edgin’s team has just finished data collection on the first longitudinal study to examine sleep disturbance and development in infants and toddlers with DS from 6-24 months of age. Further, she currently leads a NIH-funded multisite study to design and validate a new neuropsychological assessment tool for use in intellectual disabilities, the “Arizona Memory Assessment for Preschoolers and Special Populations.” She was instrumental in the design and validation of one important battery of cognitive tests validated specifically for use in DS: The Arizona Cognitive Test Battery.

Dec
4
Wed
Clinical Trials on Alzheimer’s Disease @ Hilton Bayfront San Diego
Dec 4 @ 4:00 pm – Dec 8 @ 2:30 pm

The development of the next generation of Alzheimer’s disease treatments is among the most important health needs worldwide, but presents huge challenges. The goal of the meeting is to bring together today’s worldwide leaders in the treatment of Alzheimer’s disease to discuss new results, candidate therapeutics, and methodological issues important to the development of the next generation of Alzheimer’s disease treatments.

Clinical trial teams from worldwide centers will report on their efforts to identify new biomarkers of disease as well as more sensitive clinical assessment tools to identify those at risk for AD, to predict progression, and assess the effectiveness of new treatments.

The future of clinical trials may lie in revisiting all drugs known to be safe and evaluate their relevance in AD treatment. We learned at CTAD 2018 of the importance of non-pharmaceutical trials and that anti-amyloid treatment for AD should begin early on in the disease process. Furthermore we also learned more of another pathway with Tau Biomarkers, and their implications for AD along with combination therapeutics and phase 3 clinical trials results. Again in 2019 Clinical teams will present their population studies on subjects in the early stage of the disease or even at the asymptomatic stage.

CTAD 2019 will highlight the latest on trying to get these trials off the ground.

Overall, the aim of the conference is to overcome the hurdles and speed the development of effective treatments.

Jan
18
Sat
8th Annual Funding Futures Chicago @ Fitzgerald's
Jan 18 @ 6:00 pm – 11:00 pm

 

Save The Date!!

8th Annual Funding Futures Chicago

Fitzgerald’s

6615 W Roosevelt

Berwyn, IL 60402

 

Stay tuned for more information or please feel free to visit the Funding Futures website @ http://fundingfutures.us/chicago