May
13
Wed
MDSC 2020 Virtual Conference
May 13 – Jul 31 all-day

Trailblazers

Paving the Way to a Bright Future Through Innovative Research

MDSC 36th Annual Virtual Conference

Register today so you will be one of the first people to access the virtual conference when it goes live in mid-June!

 

 LuMind IDSC’s recorded presentations

Accelerating Research in Down syndrome 

Hampus Hillerstrom, President & CEO, LuMind IDSC; Stefan Pinter, PhD, Assistant Professor, University of Connecticut Health

Research advances in Alzheimer’s disease, sleep, speech, cognition and auto-immune conditions show potential to improve the health of people with Down syndrome (DS). The Down Syndrome – Clinical Trial Network and the clinical trial, the LIFE-DSR Study, have been launched to accelerate DS research. Results from recent family surveys on sleep apnea and independence and the launch of the new online resource for families, the Down Syndrome Clinic 2 You (DSC2U), will be included. Dr. Pinter will cover recent work evaluating the potential to silence chromosome 21 in cells. New approaches to remaining challenges toward this goal will be addressed.

Alzheimer’s Disease in Down syndrome: What We Know, What Gives Us Hope for the Future 

James Hendrix, PhD, Chief Scientific Officer, LuMind IDSC

Individuals with Down syndrome face a higher risk for Alzheimer’s disease later in life, but what can we learn from current research and what gives us hope for the future? This session will provide an overview of recent progress in Alzheimer’s disease research and how this could help people with Down syndrome in the future.

 

Register today so you will be one of the first people to access the virtual conference when it goes live in June. You’ll receive a link and personal custom password via email for the site. The registration fee is only $29.99 per household and will include access to all the presentations that you can view at your convenience through the end of the 2020 calendar year.

Jun
25
Thu
National Down Syndrome Congress (NDSC) Conference 2020 – Cancelled @ Hyatt Regency New Orleans
Jun 25 – Jun 28 all-day

 

National Down Syndrome Congress

LuMind IDSC is proud to announce and sponsor the 2nd annual RESEARCH RALLY of the 2020 NDSC Conference. We are looking forward to reuniting with family and friends on June 26th in New Orleans to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.

 

 

Jul
26
Sun
Alzheimer’s Association International Conference (AAIC) @ Amsterdam RAI Exhibit and Event Complex
Jul 26 – Aug 1 all-day

AAIC 2020 will bring together international investigators, clinicians and care researchers to discuss the latest studies, theories and discoveries that will help bring the world closer to breakthroughs in dementia science.

LuMind IDSC’s Cheif Scientific Officer, Dr. James Hendrix will be presenting on “Engaging the Down Syndrome Community: Overcoming Barriers to Clinical Trial Recruitment” and it is scheduled for Monday, July 27th at 4:15 – 5:45 pm.

Accepted FRS Recording and Live Chat on demand will be available on July 29.

Chatroom date:  July 29 from 9:30  – 9:55 a.m. US Central Time

The Conduct of Clinical Investigations in the Down Syndrome Population

Session Chairs:  Joanne Bell

Presenting Authors: James Hendrix, Juan Fortea, Andre Strydom, Joanne Bell

Live PIA Day Scientific Session & Annual Business Meeting
Monday, August 10, 12:00 – 1:30 p.m. US Central Time

To attend, you will need to register in advance via this link.  After registering, you will receive a confirmation email containing information about joining this call.

 

Sep
11
Fri
2020 DSDN Rockin’ Mom Retreat @ Gaylord Rockies Resort and Convention Center
Sep 11 – Sep 12 all-day

LuMind IDSC will be an exhibitor at the 2020 DSDN Rockin’ Mom Conference.  Stop by and let us brief you and give you an overview of our services and research opportunities.

For more information on the conference contact DSDN at info@dsdiagnosisnetwork.org

 

 

Sep
18
Fri
8th Annual Family Weekend at Great Wolf Lodge
Sep 18 – Sep 20 all-day

We know many of you have been waiting for an update on plans for the 2020 Family Weekend and we thank you for your patience and understanding. We’ve been working hard to decide the best course of action and have had many conversations with our staff, Great Wolf Lodge, and our contract negotiating team. Due to the uncertainties surrounding COVID-19, predictions of a second wave this fall, and the varying restrictions by state, we have decided to transition the 2020 Family Weekend to a virtual event for all 18 Great Wolf Lodge locations. This has been a difficult decision but the safety of our families and especially our loved ones with Down syndrome is of the utmost importance.

We are very excited to be hosting the virtual event September 18 and 19. Stay tuned for details. We hope you will consider joining us for the virtual event!

And more good news – we are already planning for the 2021 in-person event the weekend of September 17-19! We anticipate 2021 being our biggest and best year to date!

For families that booked a room for the 2020 Family Weekend, The following 3 options listed below are available to you.
NOTE: Please contact Great Wolf Lodge by May 29, 2020. After this date, all reservations will be cancelled.

1. Move your reservations from the 2020 block and book into one of the 2021 blocks now:

LuMind IDSC families can call reservations at 800.905.9653 and ask that their 2020 reservation be moved to the 2021 LuMind IDSC Family Weekend block (September 17-19. 2021). Reservations can only be made by calling the Great Wolf Lodge reservation line. Online reservations are not currently available. 

Families that would like to switch the property that they are staying at (for example the existing reservation is in Garden Grove and they want to switch to Manteca) they will need to cancel their existing reservation and move that to the new 2021 block in the new location.

For the new code to book your room please email mslape@lumindidsc.org.

2. Cancel your reservation in 2020 without rebooking:

LuMind IDSC families will have the opportunity to call our central reservations department at 800.905.9653 and either cancel, move or re-book their reservation to a new date by 05.29.2020. If your reservation is in the 2020 block and is not canceled by 05.29.2020, Great Wolf Resorts will automatically start the process to cancel/refund on 06.01.2020. This automated process will make it easier for those families who want to cancel and get their full refund without having to call in to do it and reducing the number of calls that their central reservations department receives. The full refund will be processed about 10-14 days after 06.01.2020.

3. For families that have a reservation for 2020 and still want to make a reservation for the same weekend:

These guests will have to call central reservations 800.905.9653 and ask for their reservation to be updated under the new PPC (Preferred Pack Club) rate code IDSC655A. This special code for LuMind IDSC family weekend alums is redeemable for the same weekend OR anytime during 2020 and 2021. The exclusive discount rates do vary depending on time of the year and day of the week.

Thank you for your understanding. Stay healthy. Stay safe.

Michelle Slape
LuMind IDSC Director of Family Weekend