World Down Syndrome Day (WDSD) is a global awareness day selected to signify the uniqueness of the three copies of the 21st chromosome. Join us in celebrating individuals with Down syndrome and their accomplishments. Let’s show the world how they soar!
Please visit www.lumindidsc.org/soar for more information.
Important Announcement Regarding Coronavirus and 2020 MDSC Conference
After careful consideration, MDSC has made the difficult decision to cancel our 36th Annual Conference on March 28, 2020 at the DCU Center due to risks associated with the coronavirus.
Our decision to cancel our flagship educational event was not taken lightly. It was made after closely monitoring updates and recommendations from the MA Department of Public Health and Centers for Disease Control and Prevention (CDC), and after conferring with MDSC leadership, including our Board chair and the chair of our Medical and Scientific Advisory Council.
Ultimately, our top priority, at our Annual Conference and all MDSC events and gatherings, is our members’ and participants’ health and safety.
Although we are all incredibly disappointed about this news, we are already discussing the development of a Virtual Annual Conference, which will include speaker presentations, so that our members can have access to the important resources and information that have already been prepared.
This is a first for us. In the three and half decades of MDSC’s Annual conference, we have never NOT held the event live and in person to learn together and celebrate our loved ones with Down syndrome. We truly appreciate your support and understanding as we respond to this public health crisis that is emerging. The safety and well-being our of our members is our #1 priority.
As the late disability advocacy pioneer Dr. Allen Crocker used to say, our community is resilient and we will “Carry On!”
Stay tuned to our website, social media channels and your email inbox for more information as plans for our Virtual Annual Conference evolve.
Please contact us at email@example.com if you have any questions.
LuMind IDSC is happy to help sponsor the MDSC 36th Annual Conference.
MDSC is proud to announce its Trailblazers theme for the 2020 Down syndrome conference!
For the past 36 years, the MDSC and our families have been paving the way to a brighter future for our loved ones with Down syndrome.
Driven by a profound need to give all people with Down syndrome the best life possible, we have forged a path forward using every tool available — communication, collaboration, advocacy, education, and, ultimately, by standing up for what’s right.
Along the way, we have empowered people with Down syndrome to become effective self advocates, ensured that they have access to high quality education, medical services, research and employment opportunities, provided critical networking and supports, and worked day in and day out to raise awareness in our neighborhoods, hospitals, schools and communities.
For decades now, we have been powerful trailblazers, both individually and collectively, truly altering public perceptions, raising expectations and improving the lives of our loved ones with Down syndrome and our society for the better.
Join us in 2020 as we honor this legacy and consider how we will continue trailblazing an even brighter future for decades to come.
New Parents: Sharing Our Stories
The team at the National Down Syndrome Society (NDSS) has been closely monitoring the rapidly changing situation around Coronavirus Disease 2019 (COVID-19) with great concern for our community. As an organization dedicated to supporting all individuals with Down syndrome, we are particularly worried about the impact this pandemic will have on our loved ones who already face significant health challenges. Your health and safety are our highest priority, and we are committed to doing what we can to keep everyone safe.
For this reason, we have made the decision to cancel the 2020 NDSS Adult Summit scheduled for May 7-9 in Scottsdale, AZ. We are currently working on plans to create virtual opportunities for you to learn from our wonderful speakers. We will be in touch in the coming weeks with details about our virtual schedule and how to join the sessions. We will also communicate as soon as a new date for an in-person Adult Summit has been set.
Please join LuMind IDSC at the 2020 NDSS Down Syndrome Adult Summit in Phoenix, AZ, May 7th – May 9th, 2020. The summit will be hosted at The Phoenician, Luxury Collection Resort.
The 2020 NDSS Down Syndrome Adult Summit is open to all individuals who play any role in the life of individuals with Down syndrome with a specific focus on caregivers, family members, professionals, and individuals with Down syndrome.
The 3rd NDSS Adult Summit will cover important and critical topics for all adults with Down syndrome and ID/DD. Speakers and topics will align with NDSS’ robust, comprehensive programs and pillars – including healthcare & research, inclusive education, community integration, economic self-sufficiency, aging-related health issues, employment and the NDSS #DSWORKS® Campaign.
American Academy of Developmental Medicine & Dentistry (AADMD) is a non-profit organization of interdisciplinary medical professionals including physicians, dentists, optometrists, neurologists and other clinicians committed to improving the quality of healthcare for people with IDD.
Since 2002, the AADMD has connected clinicians across the world and prepared them to face the unique challenges in caring for people with IDD. The organization provides curriculum to schools, IDD training for clinicians and specialized information to families and caretakers in language that is easy to understand. Above all, AADMD aims to make sure that no person with IDD is left without access to quality health services.
LuMind IDSC is proud to announce and sponsor the 2nd annual RESEARCH RALLY of the 2020 NDSC Conference. We are looking forward to reuniting with family and friends on June 26th in New Orleans to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.
To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.
AAIC 2020 will bring together international investigators, clinicians and care researchers to discuss the latest studies, theories and discoveries that will help bring the world closer to breakthroughs in dementia science.
LuMind IDSC’s Cheif Scientific Officer, Dr. James Hendrix will be presenting on “Engaging the Down Syndrome Community: Overcoming Barriers to Clinical Trial Recruitment” and it is scheduled for Monday, July 27th at 4:15 – 5:45 pm.
In addition, our scientific poster with DGI has been accepted. Understanding meaningful symptoms and challenges in people with Down syndrome and dementia: A qualitative study of caregivers’ perspectives.
LuMind IDSC will be an exhibitor at the 2020 DSDN Rockin’ Mom Conference. Stop by and let us brief you and give you an overview of our services and research opportunities.
For more information on the conference contact DSDN at firstname.lastname@example.org