8th Annual Night of Arts and Blues @ The Brick
Feb 21 @ 8:00 pm


Arts N Blues


A Night of Art & Blues is a fundraiser to raise money for cognitive research on Down Syndrome.  All money raised will be donated to the LuMind IDSC Foundation.

The night will be a cocktail-formal affair, with a live blues band, great food, original art, an open bar, and a lot of fun.

Tickets are $75 each or $125 for two tickets. You can buy tickets (or donate in lieu of buying tickets) by clicking on the link below.



Down Syndrome Affiliates In Action (DSAIA) 2020 Conference @ Rosen Plaza
Feb 27 – Mar 1 all-day



LuMind IDSC Foundation is proud to be a Bronze sponsor of the 2020 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 27th in sunny Orlando, Florida to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMind IDSC Foundation @ Booth # 5 to learn more about the exciting research, LIFE-DSR and the new LuMind IDSC initiatives for the Down syndrome community.

Join Our Workshops


To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.

2020 New York City Half Marathon
Mar 15 all-day



Run through Time Square and into Central Park on March 15th while raising funds for LuMind IDSC. LuMind IDSC’s fundraising minimum for the NYC 1/2 is $1,000. For more information please contact Becca at runfords@lumindids.org

Click here to learn more about United Airlines NYC Half Marathon

World Down Syndrome Day 2020 – Watch Me Soar
Mar 19 – Mar 27 all-day

World Down Syndrome Day (WDSD) is a global awareness day selected to signify the uniqueness of the three copies of the 21st chromosome. Join us in celebrating individuals with Down syndrome and their accomplishments. Let’s show the world how they soar!

Please visit www.lumindidsc.org/soar for more information.


NDSS 2020 Virtual Adult Summit Conference
May 4 – May 28 all-day


LuMind IDSC’s Recorded Presentations
At NDSS Virtual Summit

If you were unable to join our live presentations and LuMind IDSC’s Lunch and Learn you can still register and Save 21% with the LuMindIDSC2020 code.

LuMind IDSC Scheduled Sessions:

Join our Chief Scientific Officer, Jim Hendrix to find out what LuMind IDSC is doing to prevent Alzheimer’s in Down Syndrome.

Advances in Down Syndrome Research with Hampus Hillerstrom, LuMind IDSC’s President & CEO

Down Syndrome & Sleep and Sleep Apnea with CSO, James Hendrix.

Virtual Lunch and Learn with NDSS and LuMind IDSC!

Join us for the first NDSS Adult Summit Virtual Lunch and Learn, hosted and moderated by LuMind IDSC, where you get to decide what you want to hear from a panel of speakers with over four decades of experience as caregivers, healthcare providers, and Alzheimer’s research for adults with Down syndrome.

Dr. James Hendrix, the Chief Scientific Officer of LuMind IDSC will present your questions to the panelists who will answer as many as they can that day.

Panelist speakers: Dr. Brian Chicoine Co-founder and Medical Director of the Advocate Medical Group Adult Down Syndrome Center, Dr. Anna Burke, Geriatric Psychiatrist and the Director of Neuropsychiatry at Barrow Neurological Institute, Dr. Matt Janicki, Co-chair of the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and Phyllis Ferrell, Head External Engagement, Alzheimers, and Neurodegeneration at Eli Lilly and Company. Founder Women Against Alzheimer’s

Stop by our Virtual booth at https://www.ndss.org/virtual-exhibit-booth/lumind-idsc/

LuMind IDSC and NDSS Focus Groups

LuMind IDSC and NDSS are seeking parents or caregivers of individuals with Down syndrome to participate in a focus group aimed to gather information regarding experiences, motivations and thoughts pertaining to aging with Down syndrome to increase our understanding and shape future initiatives and services.

Participants will be asked to provide feedback, thoughts and reactions on individual motivation, communication, social inclusion, employment, health and health habits related to aging with Down syndrome.

The focus groups will take place through a Virtual Zoom Call on the following dates and times. To sign up, please click here.

Focus Group June 4th @  3:30-4:30 pm EST

The 2020 NDSS Virtual Adult Summit is open to all individuals who play any role in the life of individuals who have Down syndrome or are within the IDD community with a specific focus on caregivers, family members, professionals, and individuals with Down syndrome. Our Virtual Summit will take place on various dates and times throughout May.

This Virtual Summit will cover important and critical topics for all adults with Down syndrome and IDD. Speakers and topics will align with NDSS’ comprehensive programs and pillars – including healthcare, research, inclusive education, community integration, caregiving, economic self-sufficiency, aging-related health issues, and employment.

To register for the NDSS Virtual Summit please click here and don’t forget to use our 21% discount code LuMindIDSC2020.


MDSC 2020 Virtual Conference
May 13 – Jul 31 all-day


Paving the Way to a Bright Future Through Innovative Research

MDSC 36th Annual Virtual Conference

Register today so you will be one of the first people to access the virtual conference when it goes live in mid-June!


 LuMind IDSC’s recorded presentations

Accelerating Research in Down syndrome 

Hampus Hillerstrom, President & CEO, LuMind IDSC; Stefan Pinter, PhD, Assistant Professor, University of Connecticut Health

Research advances in Alzheimer’s disease, sleep, speech, cognition and auto-immune conditions show potential to improve the health of people with Down syndrome (DS). The Down Syndrome – Clinical Trial Network and the clinical trial, the LIFE-DSR Study, have been launched to accelerate DS research. Results from recent family surveys on sleep apnea and independence and the launch of the new online resource for families, the Down Syndrome Clinic 2 You (DSC2U), will be included. Dr. Pinter will cover recent work evaluating the potential to silence chromosome 21 in cells. New approaches to remaining challenges toward this goal will be addressed.

Alzheimer’s Disease in Down syndrome: What We Know, What Gives Us Hope for the Future 

James Hendrix, PhD, Chief Scientific Officer, LuMind IDSC

Individuals with Down syndrome face a higher risk for Alzheimer’s disease later in life, but what can we learn from current research and what gives us hope for the future? This session will provide an overview of recent progress in Alzheimer’s disease research and how this could help people with Down syndrome in the future.


Register today so you will be one of the first people to access the virtual conference when it goes live in June. You’ll receive a link and personal custom password via email for the site. The registration fee is only $29.99 per household and will include access to all the presentations that you can view at your convenience through the end of the 2020 calendar year.

AADMD 2020 Virtual Conference @ Wydham Pittsburgh Down Town
Jun 4 – Jun 6 all-day


American Academy of Developmental Medicine & Dentistry (AADMD) is a non-profit organization of interdisciplinary medical professionals including physicians, dentists, optometrists, neurologists and other clinicians committed to improving the quality of healthcare for people with IDD.

Since 2002, the AADMD has connected clinicians across the world and prepared them to face the unique challenges in caring for people with IDD. The organization provides curriculum to schools, IDD training for clinicians and specialized information to families and caretakers in language that is easy to understand. Above all, AADMD aims to make sure that no person with IDD is left without access to quality health services.


Join LuMind IDSC’s Cheif Scientific Officer, Dr. James Hendrix’s breakout Presentation Title: Down Syndrome Research: Recent Progress for Better Health on Tuesday, June 16, 2020 7:30-8:00 PM EDT.

Conference Website, Details, and Registration

For the most up to date conference information, visit https://aadmdconference.com/.

For the agenda, including the full breakout schedule and abstracts, visit https://aadmdconference.com/2020-agenda.

We’ve slashed our ticket prices since going virtual. For all the options, visit https://aadmdconference.com/pricing.

If you have not yet registered for the conference, please do so here https://attendify.co/2020-aadmd-one-voice-conference-kC1GUQ5


National Down Syndrome Congress (NDSC) Conference 2020 – Cancelled @ Hyatt Regency New Orleans
Jun 25 – Jun 28 all-day


National Down Syndrome Congress

LuMind IDSC is proud to announce and sponsor the 2nd annual RESEARCH RALLY of the 2020 NDSC Conference. We are looking forward to reuniting with family and friends on June 26th in New Orleans to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.



Alzheimer’s Association International Conference (AAIC) @ Amsterdam RAI Exhibit and Event Complex
Jul 26 – Aug 1 all-day

AAIC 2020 will bring together international investigators, clinicians and care researchers to discuss the latest studies, theories and discoveries that will help bring the world closer to breakthroughs in dementia science.

LuMind IDSC’s Cheif Scientific Officer, Dr. James Hendrix will be presenting on “Engaging the Down Syndrome Community: Overcoming Barriers to Clinical Trial Recruitment” and it is scheduled for Monday, July 27th at 4:15 – 5:45 pm.

In addition, our scientific poster with DGI has been accepted. Understanding meaningful symptoms and challenges in people with Down syndrome and dementia: A qualitative study of caregivers’ perspectives.


2020 DSDN Rockin’ Mom Retreat @ Gaylord Rockies Resort and Convention Center
Sep 11 – Sep 12 all-day

LuMind IDSC will be an exhibitor at the 2020 DSDN Rockin’ Mom Conference.  Stop by and let us brief you and give you an overview of our services and research opportunities.

For more information on the conference contact DSDN at info@dsdiagnosisnetwork.org