LuMind Foundation


The LuMind Foundation (formerly Down Syndrome Research and Treatment Foundation РDSRTF) was a 501(c)3 founded by two families in 2004 soon after the decoding of the human genome, which opened the door to biomedical research in the field of cognition research for individuals living with Down syndrome. The mission of the organization was to stimulate biomedical research to develop treatments to improve cognition, including memory, learning and speech.  DSRTF soon became the largest non-governmental source of funding in the United States for biomedical research for individuals with DS, granting to top universities including Stanford University, Hopkins University, and the University of California San Diego, among others. DSRTF was renamed to LuMind Foundation in [2015].

Founders

Dawn and Roger Kafker
Patty and Jim White

Honorary Board Members and other Key Members

Terry Ancel Michael Harpold Betsy Plaschke
Ann Margaret Christy Stephen Lazare Anthony Providenti
Jim Dovey Jane Lodato Vince Randazzo
Margie Doyle Darryl Mikuni Roger Reeves
Patty White and Dan Flatley Bill Mobley Sarah Wernikoff

 

 

RDS Foundation


The Research Down Syndrome (RDS) Foundation launched in 2009 with a goal of accelerating the development of new opportunities and independence for people with Down syndrome through emerging science. Based in Chicago, RDS focused on the development of national initiatives to catalyze research, generate public awareness, and increase fundraising for Down syndrome research. Key initiatives included the Light the Way campaign with the spouses of US state governors, launching a running program to provide a platform for athletes around the country to support research, offering research seminars around the country, and organizing a network of gala events. RDS formally merged with DSRTF in February 2015 and the combined organization became known as the LuMind RDS Foundation.

Founders

Dan and Patty (White) Flatley
Bob Schoen

Honorary Board Members and other Key Members

Lara Font
Karen Shea

 

 

International Down Syndrome Community (IDSC)


The International Down Syndrome Community (IDSC) began informally in 2008 when a group of moms from around the world answered a need in the Down syndrome community to provide a safe forum for parents to discuss issues ranging from prenatal testing and diagnosis to grief to medical journeys and to find peer-to-peer support and acceptance. IDSC, formerly the International Down Syndrome Coalition, formed as a 501©3 in 2013. IDSC formally merged with the LuMind RDS Foundation in 2019 and the combined organization was renamed to LuMind IDSC Foundation.

 
 

Founders

Beth Sullivan Ibby Russell
Diane Grover Kayla Glascock
Kris Delaney

Honorary Board Members and other Key Members

Bethany Balsis Suzanne Culpepper Maria Dellapina
Shannon French Linda Nargi Kim Roe
Michelle Slape Beth Sullivan Kim Warren