Adult Guardianship Handbooks by State

The Adult Guardianship Handbooks by State provides a listing of guardianship information for each state.

Alzheimer’s Disease

Studies suggest that more than 75 percent of those with Down syndrome aged 65 and older have Alzheimer’s disease, nearly 6 times the percentage of people in this age group who do not have Down syndrome.

The Alzheimer’s assocation has compiled a list of 10 signs to assist in early detection of Alzheimer’s.

clinical trial finder

The LuMind IDSC Foundation clinical trial finder helps you quickly find active clinical trials by location, age, or general keyword description.

Dental Care

The following resources are helpful in determining proper dental care for individuals with Down syndrome.
Dental Care for the Patient with Down Syndrome
Practical Oral Care for People With Down Syndrome

Growth Charts

New growth charts developed for US children with Down syndrome

“Pediatric researchers have developed the first set of growth charts for U.S. children with Down syndrome since 1988. These new charts provide an important tool for pediatricians to evaluate growth milestones for children and adolescents with this condition. With these new charts, pediatricians will be able to compare each patient’s growth patterns with peers of the same age and sex who have Down syndrome.”

Growth Charts for Children With Down Syndrome in the United States

“Children with Down syndrome (DS) have lower birth weights and grow more slowly than children without DS. Advances in and increased access to medical care have improved the health and well-being of individuals with DS; however, it is unknown whether their growth has also improved. Our objective was to develop new growth charts for children with DS and compare them to older charts from the United States and more contemporary charts from the United Kingdom.”

Health Care Guidelines for Adults with Down Syndrome

The Health Care Management of Adults with Down Syndrome provides guidance for the health care of adults with Down syndrome.

Health Care Guidelines for children with down syndrome

The American Academy of Pediatrics has established a Health Supervision for Children with Down Syndrome guideline that is a helpful tool for providing parents the supervisions appropriate for each age group.

These guidelines are designed to assist the pediatrician in caring for the child in whom a diagnosis of Down syndrome has been confirmed by chromosome analysis.

The following guidelines are also available:
Health Care Information for Families of Children with Down Syndrome

Sleep and Down syndrome

Sleep is a common issue for individuals with Down syndrome. This resource has information regarding Sleep, Sleep Disorders and Down Syndrome, Sleep Solutions and Dementia and Sleep Disorders.

Supported Decision Making for Adults with Down Syndrome

Some states have passed laws to require the legal system to recognize supported decision making documents and wishes as an alternate to guardianship. Please visit the Supported Decision Making website for more information.