Adult Guardianship Handbooks by State
The Adult Guardianship Handbooks by State provides a listing of guardianship information for each state.
Studies suggest that more than 75 percent of those with Down syndrome aged 65 and older have Alzheimer’s disease, nearly 6 times the percentage of people in this age group who do not have Down syndrome.
clinical trial finder
The LuMind IDSC Foundation clinical trial finder helps you quickly find active clinical trials by location, age, or general keyword description.
The following resources are helpful in determining proper dental care for individuals with Down syndrome.
Dental Care for the Patient with Down Syndrome
Practical Oral Care for People With Down Syndrome
“Pediatric researchers have developed the first set of growth charts for U.S. children with Down syndrome since 1988. These new charts provide an important tool for pediatricians to evaluate growth milestones for children and adolescents with this condition. With these new charts, pediatricians will be able to compare each patient’s growth patterns with peers of the same age and sex who have Down syndrome.”
“Children with Down syndrome (DS) have lower birth weights and grow more slowly than children without DS. Advances in and increased access to medical care have improved the health and well-being of individuals with DS; however, it is unknown whether their growth has also improved. Our objective was to develop new growth charts for children with DS and compare them to older charts from the United States and more contemporary charts from the United Kingdom.”
Health Care Guidelines for Adults with Down Syndrome
The Health Care Management of Adults with Down Syndrome provides guidance for the health care of adults with Down syndrome.
Health Care Guidelines for children with down syndrome
The American Academy of Pediatrics has established a Health Supervision for Children with Down Syndrome guideline that is a helpful tool for providing parents the supervisions appropriate for each age group.
These guidelines are designed to assist the pediatrician in caring for the child in whom a diagnosis of Down syndrome has been confirmed by chromosome analysis.
The following guidelines are also available:
Health Care Information for Families of Children with Down Syndrome
Sleep and Down syndrome
Supported Decision Making for Adults with Down Syndrome
Some states have passed laws to require the legal system to recognize supported decision making documents and wishes as an alternate to guardianship. Please visit the Supported Decision Making website for more information.