COVID-19 and Down Syndrome – LuMind IDSC Foundation

COVID-19 and Down Syndrome

LuMind IDSC and other Down syndrome organizations have received inquiries from families about COVID-19 and their concerns for their loved one with Down syndrome. The information is currently evolving and we are closely monitoring current and accurate information surrounding COVID-19.   Start Survey Comienze la Encuesta Watch Interview Download Infographic If you care for a … Continue reading COVID-19 and Down Syndrome

You may also download the abbreviated Q&A and expanded Q&A PDFs files. We encourage you to share this resource broadly and for organizations to post it on their websites.

We encourage you to submit any further questions or comments to us at We will share with the collaborating group and review as part of regular future updates of this resource. Our collective efforts will strengthen the community’s access to valuable resources to stay safe and healthy.

COVID-19 and Preserving Human Rights for People with Down Syndrome

As medical systems plan for a possible flood of COVID-19 patients, healthcare professionals in the United States may draft guidance to ration care in order to ensure the largest number of people will survive the pandemic. However, LuMind IDSC has read reports of at least two cases from Alabama and Washington State where the guidance could limit access to needed care for people with disabilities, including those with Down syndrome, in violation of non-discrimination laws. Several organizations, led by the Arc and The Center for Public Representation, recently filed complaints with the U.S. Department of Health and Human Services Office for Civil Rights (OCR).

LuMind IDSC is coordinating with other leading Down syndrome organizations to prevent discrimination in the provision of care and treatments for people with Down syndrome. Read more here.

Q&A on COVID-19 and Down Syndrome with Dr. Nicole Baumer

April 1, 2020

#T21COVID Hashtag on Social Media

Along with other Down syndrome organizations, LuMind IDSC has adopted the hashtag #T21COVID on social media (Facebook, Instagram, LinkedIn and Twitter) so that families can easily identify information on COVID-19 and Down syndrome.

Below is a link of relevant information from experts in the Down syndrome community. This listing will be updated as new information is released.

Current Articles

CDC: People at Risk for Serious Illness from COVID-19
CDC: COVID-19 and Children FAQ 
Resources for Families
COVID-19 and Down Syndrome Updates (MGH)
COVID-19 Fact Sheet (NDSS)
Fraudulent Claims and Products
What the Down Syndrome Community Needs to Know from Dr. Andrew Nowalk
Travel Considerations
Work and Activity Considerations for People with Down Syndrome [COVID-19]
Illinois Expert Answers Your Top Coronavirus Question

People at Risk for Serious Illness from COVID-19

Centers for Disease Control and Prevention

March 12, 2020
Early information out of China, where COVID-19 first started, shows that some people are at higher risk of getting very sick from this illness. This includes:

  • Older adults
  • People who have serious chronic medical conditions like:
    • Heart disease
    • Diabetes
    • Lung disease

If a COVID-19 outbreak happens in your community, it could last for a long time. (An outbreak is when a large number of people suddenly get sick.) Depending on how severe the outbreak is, public health officials may recommend community actions to reduce people’s risk of being exposed to COVID-19. These actions can slow the spread and reduce the impact of disease.

If you are at higher risk for serious illness from COVID-19 because of your age or because you have a serious long-term health problem, it is extra important for you to take actions to reduce your risk of getting sick with the disease. Read more 

Back to top

COVID-19 and Children FAQ

Centers for Disease Control and Prevention

March 12, 2020
Based on available evidence, children do not appear to be at higher risk for COVID-19 than adults. While some children and infants have been sick with COVID-19, adults make up most of the known cases to date. You can learn more about who is most at risk for health problems if they have COVID-19 infection on CDC’s current Risk Assessment page. Read more

Back to top

Resources for Families

These unprecedented times due to the Coronavirus (COVID 19) pandemic necessitates the need to stay home and practice social distancing. With schools closures, parents working remotely, and families staying at home, we find ourselves more socially isolated. We have compiled a list of online resources that may be helpful to families as more of us turn to online resources for both education and entertainment during these challenging times.

Back to top

COVID-19 and Down Syndrome Updates

MassGeneral Hospital for Children Down Syndrome Program

March 16, 2020

Back to top

COVID-19 Fact Sheet

National Down Syndrome Society

March 11, 2020
NDSS has developed a COVID-19 fact sheet with helpful information about the virus and tips to stay healthy.

Back to top

Fradulent Claims and Products

U.S. Food & Drug Administration

The U.S. Food and Drug Administration is issuing warning letters to firms for selling fraudulent products with claims to prevent, treat, mitigate, diagnose or cure coronavirus disease 2019 (COVID-19). They are actively monitoring for any firms marketing products with fraudulent COVID-19 prevention and treatment claims. An active listing of warning letters can be found on their website.

World Health Organization

The World Health Organization (WHO) has created a Myth Busters page on their website to distinguish fact from myth.

WHO has also refuted viral claims that holding your breath can test for COVID-19. Facebook posts shared thousands of times claim that holding your breath for more than 10 seconds is an effective test for the novel coronavirus, and that drinking water regularly can prevent the disease. The claims are false; the World Health Organization and other experts said there was no evidence to support these claims.

Hackers are making fake coronavirus tracking apps that are actually ransomware, claiming to leak social media accounts and delete a phone’s storage unless a victim pays $100 in bitcoin. The concerns surrounding the coronavirus outbreak are being exploited by hackers taking advantage of people’s thirst for information. An Android app called “COVID-19 Tracker” is just one example of ransomware that masks itself as a real-time coronavirus map tracker, according to researchers.

Back to top

COVID-19 – What the Down Syndrome Community Needs to Know from Dr. Andrew Nowalk

Down Syndrome Center of Western Pennsylvania

March 10, 2020
Dr. Andrew Norwalk talks in this podcast about the novel Coronavirus (COVID-19) and, more specifically, about what the Down syndrome community needs to know about this virus. He discusses those with Down syndrome who may be at higher risk of serious illness due to underlying medical conditions.

Back to top

Travel Considerations for People with Down Syndrome

Dr. Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center

March 16, 2020

Back to top

Work and Activity Considerations for People with Down Syndrome [COVID-19]

Dr. Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center

March 16, 2020

Back to top

Illinois Expert Answers Your Top Coronavirus Questions

Advocate Health Care

March 3, 2020
Dr. Robert Citronberg, director of the division of infectious disease at Advocate Lutheran General Hospital responds to questions and concerns regarding the coronavirus.

Back to top